Audio Deep Dive - The Weight of Waiting: Living with a Tentative Neurological Diagnosis
Living in medical limbo is a terrible place to be. The constant dismissals and feeling like no one wants to solve your puzzle, it’s the whole damn system.
I'm a writer living with a rare motor neurone disease. I write candid reflections on chronic illness, the unfiltered every day, and the journey of the mind and heart.
Living in medical limbo is a terrible place to be. The constant dismissals and feeling like no one wants to solve your puzzle, it’s the whole damn system.
Living in medical limbo is a terrible place to be. The constant dismissals and feeling like no one wants to solve your puzzle, it’s the whole damn system.
Living with chronic illness means adapting our dreams, not abandoning them. Together with my wife, we're learning to explore the world in new ways, finding joy in small adventures and cherishing the moments we can steal away from the disease that tries to define us.
Living with chronic illness means adapting our dreams, not abandoning them. Together with my wife, we're learning to explore the world in new ways, finding joy in small adventures and cherishing the moments we can steal away from the disease that tries to define us.
Diagnostic overshadowing is a serious healthcare issue causing patient misdiagnosis and neglect. My experience highlights the need for medical reform to ensure patients are heard and properly treated. Medical professionals must reassess their diagnostic methods and better advocate for patients.
Diagnostic overshadowing is a serious healthcare issue causing patient misdiagnosis and neglect. My experience highlights the need for medical reform to ensure patients are heard and properly treated. Medical professionals must reassess their diagnostic methods and better advocate for patients.