The Weight of Waiting: Living with a Tentative Neurological Diagnosis
Living in medical limbo is a terrible place to be. The constant dismissals and feeling like no one wants to solve your puzzle, it’s the whole damn system.
Living in medical limbo is a terrible place to be. The constant dismissals and feeling like no one wants to solve your puzzle, it’s the whole damn system.
Diagnostic overshadowing is a serious healthcare issue causing patient misdiagnosis and neglect. My experience highlights the need for medical reform to ensure patients are heard and properly treated. Medical professionals must reassess their diagnostic methods and better advocate for patients.
Accepting a chronic illness isn't about pretending to be happy or putting on a brave face. It's about recognising what we can't control and learning to coexist with it. By becoming aware of our thoughts, allowing ourselves to feel, we can navigate our conditions with greater resilience and grace
In long-term relationships, intimacy can change because of life and health challenges. This discussion explores how these issues impact both physical closeness and emotional bonds. By addressing these realities openly, we can deepen our understanding and strengthen our connection as partners.
Accepting a chronic illness isn't about pretending to be happy or putting on a brave face. It's about recognising what we can't control and learning to coexist with it. By becoming aware of our thoughts, allowing ourselves to feel, we can navigate our conditions with greater resilience and grace
In long-term relationships, intimacy can change because of life and health challenges. This discussion explores how these issues impact both physical closeness and emotional bonds. By addressing these realities openly, we can deepen our understanding and strengthen our connection as partners.
Who needs enemies when you have 'friends' like these? Overhearing strangers mock disability benefits reminded me how deeply prejudice runs, and why the fight for compassion and understanding around disability must continue.
Worse than the pain, the discomfort, and the fatigue, worse than the multitude of side effects from the medications thrown at me to try to alleviate my symptoms, is the loneliness. That feeling of complete and utter isolation goes beyond merely lacking people around me - it runs deeper than that!
The day the lights went out, I realised something was profoundly wrong within me. Dealing with my chronic illness, I felt a deep lack of motivation and a sense of aimlessness. I realised that asking for help is not a weakness, but an important step to improve my mental health.