Personal stories and real-life perspectives on living with a chronic neurological disease. Explore the ups and downs, daily challenges, moments of hope, and the journey of resilience in the face of ongoing health conditions. Useful for anyone wanting support, empathy, or insight into navigating long-term illness.
Having been visibly disabled for seven years, I’m used to the stares and quiet judgements. People assume they know your whole story in a glance, but appearances tell so little. I wish folks would look past the surface, or even better, just let others get on with their lives.
Living in medical limbo is a terrible place to be. The constant dismissals and feeling like no one wants to solve your puzzle, it’s the whole damn system.
Living with chronic illness means adapting our dreams, not abandoning them. Together with my wife, we're learning to explore the world in new ways, finding joy in small adventures and cherishing the moments we can steal away from the disease that tries to define us.
Diagnostic overshadowing is a serious healthcare issue causing patient misdiagnosis and neglect. My experience highlights the need for medical reform to ensure patients are heard and properly treated. Medical professionals must reassess their diagnostic methods and better advocate for patients.
Accepting a chronic illness isn't about pretending to be happy or putting on a brave face. It's about recognising what we can't control and learning to coexist with it. By becoming aware of our thoughts, allowing ourselves to feel, we can navigate our conditions with greater resilience and grace
In long-term relationships, intimacy can change because of life and health challenges. This discussion explores how these issues impact both physical closeness and emotional bonds. By addressing these realities openly, we can deepen our understanding and strengthen our connection as partners.